Learn more about the Resource Directory

Welcome to the St. Mary’s Healthcare System Resource Directory

This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.

The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.

What you'll find

After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.

To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.

Got it!

Category: Advocacy Organizations

  1. NYC Department of Homeless Services- Client Advocacy nyc.gov

    The Department of Homeless Services’ (DHS) Office of Client Advocacy (OCA) is led by highly trained and professional workers with extensive experience providing services to homeless families and individuals. Tailoring assistance toward the individual needs of clients, OCA can help households navigate the shelter system, learn about their rights and responsibilities, and resolve conflicts/concerns by liaising between clients and shelter staff.

    Contact Information

    (800) 994-6494. Calls are answered Monday through Friday between the hours of 9 a.m. and 5 p.m.

  2. NYS Justice Center for the Protection of People with Special Needs justicecenter.ny.gov

    The Justice Center is committed to supporting and protecting the health, safety, and dignity of all people with special needs and disabilities through advocacy of their civil rights, prevention of mistreatment, and investigation of all allegations of abuse and neglect so that appropriate actions are taken

    Contact Information

     

    General Phone:
    (518) 549-0200 (Voice)
    TTY: Dial 7-1-1 for the NYS Relay and give the operator 1-518-549-0200

    Report Abuse:
    1-855-373-2122 (staffed 24 hours a day, 7 days a week)
    TTY: 1-855-373-2123

    Information & Referral:
    1-800-624-4143    (Monday-Friday, 8:30 am to 4:30 pm)
    TTY: Dial 7-1-1 for the NYS Relay and give the operator 1-800-624-4143

    Address

    NYS Justice Center for the Protection of People with Special Needs 161 Delaware Avenue Delmar, New York 12054-1310

  3. NYS Office for People with Developmental Disabilities (OPWDD) opwdd.ny.gov

    Coordinates services for New Yorkers with developmental disabilities.  Provides services directly and through a network of approximately 700 non-profit service providing agencies.  Includes Medicaid funded long-term care services and also provides NYS funded family support services, which assist families in providing care for their loved ones who live full-time in their family home.

    **OPWDD has established 13 Developmental Disabilities Service Offices (DDSOs) that allow for coordination of services.  The DDSOs are the starting points for applying for services.**

    Contact Information

    Information Line:  866-946-9733

    TTY:   866-933-4889

    Developmental Disabilities Service Offices (DDSOs)--

    Queens:  718-217-4242                   Brooklyn:   718-642-6000             Bronx/Manhattan:  212-229-3000

    Address

    44 Holland Avenue, Albany, NY 12229

  4. Parent to Parent New York State parenttoparentnys.org

    Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions.

    Regional  Office

    Parent to Parent of New York City

    25 Beaver Street, Room 405 New York, NY | 10004

    Phone: 1-800-405-8818 212-741-5545 Fax: 212-741-5545

    Counties Served: Bronx, New York (Manhattan), Kings (Brooklyn), Queens

    Contact Information

    Parent to Parent New York State

    {518) 381-4350
    (800) 305-8817

    info@ptopnys.org

    Address

    Parent to Parent of NYS 500 Balltown Road Schenectady, NY 12304 (

  5. Resources for Children with Special Needs (RCSN) resourcesnyc.org

    Founded by 3 NY mothers RCSN is a nonprofit organization that works for families and children with all special needs across all boroughs, to understand, navigate and access services.

    Contact Information

    Phone 212 766 4650
    Fax 212 677 4070
    Email info@resourcesnyc.org

    Address

    116 East 16th Street, 5th Floor New York, NY 10003

  6. The Bronx Parent Center Without Walls Resourcesny.org

    Provides free trainings, education, and assistance of parents of children with special needs.

    Address

    116 East 1

  7. The Mayors Office for People with Disabilities NYC nyc.gov

    The Mayor’s Office for People with Disabilities Web site can help you gather information on the programs that are available to people with disabilities. These resources can help in achieving greater independence, as well as assisting in furthering your education, achieving employment, and many other things that can enrich the lives of individuals with disabilities.