Learn more about the Resource Directory

Welcome to the St. Mary’s Healthcare System Resource Directory

This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.

The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.

What you'll find

After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.

To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.

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Category: Community Support Agencies

  1. AHRC of Nassau County ahrc.org

    AHRC Nassau a family governed organization, is dedicated to enhancing the lives of individuals with intellectual and developmental disabilities and their families

    AHRC Nassau operates the largest residential program in New York State with over 75 homes and 54 supportive apartments. AHRC is currently serving individuals in every community throughout Nassau County. Staff members provide 24–hour support for residents, while encouraging individuals to achieve greater levels of independence.  Individuals must be 18 years of age or older, in order to live in one of AHRC’s residences.

    Contact Information

    Residential Programs: 516-293-2016, ext. 5438

    Address

    189 Wheatley Road, Brookville, NY 11545-2699

  2. Brain Injury Association of New York State (BIANYS) bianys.org

    Advocates on behalf of individuals with brain injuries and their families, and promotes prevention.  Provides education, advocacy, and community support services that lead to improved outcomes for children and adults with brain injuries and their families.  Provides a toll-free Family Help Line, chapters & support groups.

    Contact Information

    518-459-7911

    Family Help Line: 1-800-444-6443   or    1-800-228-8201

    Address

    10 Colvin Avenue, Albany, NY 12206

  3. Brave Kids bravekids.org

    Website has information on children’s illnesses and disabilities, message boards for parents & kids and a resource guide that you can search by zip code.

  4. Catholic Charities of Brooklyn and Queens ccbq.org

    Large multi-service agency serving the needs of the poor, sick, aged, developmentally disabled.Offers preventative services, such as parenting classes. Languages spoken English, Creole, French, Spanish.

    Contact Information

    Phone:  Brooklyn   718-722-6001

    Queens    718-726-9790

    Address

    Brooklyn: 191 Joralemon Street, Brooklyn, NY 11201 Queens: 23-40 Astoria Blvd, Astoria, NY 11102

  5. Center for Independence for the Disabled-NY cidny.org

    Provide a variety of services for people with disabilities.  Benefit counselors can help with housing, health benefits, transportation, youth services, SSDI, SSI, food stamps. Brooklyn Parent Center provides outreach, information and referrals to parents, grandparents and caregivers of children ages 3-21 with disabilities.

    Contact Information

    Brooklyn Center for Independence of the Disabled (BCID):  718-998-3000, TTY: 718-998-7406

    Brooklyn Parent Center: 718-998-3000

    Bronx Independent Living Services, Inc:  718-515-2800 ext. 116   TTY: 718-515-2803

    Queens Center for Independence of the Disabled:  646-442-1520   718-886-0427    TTY: 886-948-1064

    Address

    Brooklyn Center for Independence of the Disabled (BCID): 27 Smith St., ste 200, Brooklyn, NY 12201 Brooklyn Parent Center: 27 Smith St., 2nd floor, Brooklyn, NY 12201 Bronx Independent Living Services, Inc: 4419 Third Avenue, Ste 2C, Bronx, NY 10457 Queens Center for Independence of the Disabled:80-02 Kew Gardens Rd, #107, Kew Gardens, NY 11415

  6. Chai Life Line chailifeline.org

    Since 1987, Chai Lifeline’s mission has been to restore the light of childhood to children whose innocence ended when life-threatening or lifelong illness was diagnosed. Through programs that address the emotional, social, and financial needs of seriously ill children, their families, and communities, Chai Lifeline restores normalcy to family life, and better enables families to withstand the crises and challenges of serious pediatric illness

    Contact Information

    212.465.1300
    877 CHAI LIFE

    Address

    Chai Lifeline New York/Greater Atlantic Region 151 West 30th Street Third Floor New York, NY 10001

  7. Developmental Disabilities Regional Offices (DDRO)-Brooklyn,Bronx, Queens, Manhattan, Staten Island opwdd.ny.gov

    Developmental Disabilities Regional Offices (DDROs)  are the starting point to apply for services” n> DDROs are responsible for the following activities:waiver enrollment (a Federal-State partnership which makes certain types of services available within the home or community so as to avoid placement in an institution,local management of Individual and Community Supports ,management of resources for crisis intervention, advocacy,programs, services and supports for aging individuals with developmental disabilities”

    Contact Information

    Bernard Fineson  (Queens)  718-217-4242, FAX: 718-217-4724
    Brooklyn  718-642-6000, (evenings/answering machine) 718-642-6053/6054, FAX: 718-642-6282
    Manhattan  646-766-3466, FAX: 646-766-3482
    Bronx  718-430-0885, FAX: 718-430-0482
    Staten Island  718-983-5200, FAX: 718-983-9768

  8. Epilepsy Foundation of Metropolitan New York efmny.org

    Provides a wide variety of services and supports to persons with epilepsy, their families and the community.  Respite services, service coordination, information and referral services, socialization programs and educational presentations.

    Contact Information

    212-677-8550

    Address

    65 Broadway, ste 505, New York, NY 10006

  9. Family Residences Essential Enterprises FREE familyres.org

    Contact Information

    Main Office
    PH: 516-870-1600
    FX: 516-870-1660

    Family Wellness and Community Services
    PH: 631.273.1300
    FX: 631.273.4342

    Apply for Services and Support (516) 870-1622 Admissionsinfo@familyres.org

    Address

    Main Office 191 Bethpage-Sweet Hollow Road Old Bethpage, NY 11804-1314 Family Wellness and Community Services 120 Plant Avenue Hauppauge, NY 11788

  10. Family Voices familyvoices.org

    Helps families who have children with special health care needs through national parent to parent networks. Provides family’s tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.

    Contact Information

    National (505)872-4774 or (888)835-5669
    Parent to Parent NYS (518)359-3006
    Toll Free (800)305-8817