Welcome to the St. Mary’s Healthcare System Resource Directory
This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.
The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.
What you'll find
After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.
To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.
Got it!Category: Community Support Agencies
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AHRC of Nassau County ahrc.org
AHRC Nassau a family governed organization, is dedicated to enhancing the lives of individuals with intellectual and developmental disabilities and their families
AHRC Nassau operates the largest residential program in New York State with over 75 homes and 54 supportive apartments. AHRC is currently serving individuals in every community throughout Nassau County. Staff members provide 24–hour support for residents, while encouraging individuals to achieve greater levels of independence. Individuals must be 18 years of age or older, in order to live in one of AHRC’s residences.
Contact Information
Residential Programs: 516-293-2016, ext. 5438
Address
189 Wheatley Road, Brookville, NY 11545-2699
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Brain Injury Association of New York State (BIANYS) bianys.org
Advocates on behalf of individuals with brain injuries and their families, and promotes prevention. Provides education, advocacy, and community support services that lead to improved outcomes for children and adults with brain injuries and their families. Provides a toll-free Family Help Line, chapters & support groups.
Contact Information
518-459-7911
Family Help Line: 1-800-444-6443 or 1-800-228-8201
Address
10 Colvin Avenue, Albany, NY 12206
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Brave Kids bravekids.org
Website has information on children’s illnesses and disabilities, message boards for parents & kids and a resource guide that you can search by zip code.
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Catholic Charities of Brooklyn and Queens ccbq.org
- Benefit assistance
- Community Support Agencies
- Day Habilitation Programs
- Faith Based Disability Outreach
- Prevention Services
- Residential Programs
- Respite Services
Large multi-service agency serving the needs of the poor, sick, aged, developmentally disabled.Offers preventative services, such as parenting classes. Languages spoken English, Creole, French, Spanish.
Contact Information
Phone: Brooklyn 718-722-6001
Queens 718-726-9790
Address
Brooklyn: 191 Joralemon Street, Brooklyn, NY 11201 Queens: 23-40 Astoria Blvd, Astoria, NY 11102
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Center for Independence for the Disabled-NY cidny.org
Provide a variety of services for people with disabilities. Benefit counselors can help with housing, health benefits, transportation, youth services, SSDI, SSI, food stamps. Brooklyn Parent Center provides outreach, information and referrals to parents, grandparents and caregivers of children ages 3-21 with disabilities.
Contact Information
Brooklyn Center for Independence of the Disabled (BCID): 718-998-3000, TTY: 718-998-7406
Brooklyn Parent Center: 718-998-3000
Bronx Independent Living Services, Inc: 718-515-2800 ext. 116 TTY: 718-515-2803
Queens Center for Independence of the Disabled: 646-442-1520 718-886-0427 TTY: 886-948-1064
Address
Brooklyn Center for Independence of the Disabled (BCID): 27 Smith St., ste 200, Brooklyn, NY 12201 Brooklyn Parent Center: 27 Smith St., 2nd floor, Brooklyn, NY 12201 Bronx Independent Living Services, Inc: 4419 Third Avenue, Ste 2C, Bronx, NY 10457 Queens Center for Independence of the Disabled:80-02 Kew Gardens Rd, #107, Kew Gardens, NY 11415
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Chai Life Line chailifeline.org
Since 1987, Chai Lifeline’s mission has been to restore the light of childhood to children whose innocence ended when life-threatening or lifelong illness was diagnosed. Through programs that address the emotional, social, and financial needs of seriously ill children, their families, and communities, Chai Lifeline restores normalcy to family life, and better enables families to withstand the crises and challenges of serious pediatric illness
Contact Information
212.465.1300
877 CHAI LIFEAddress
Chai Lifeline New York/Greater Atlantic Region 151 West 30th Street Third Floor New York, NY 10001
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Developmental Disabilities Regional Offices (DDRO)-Brooklyn,Bronx, Queens, Manhattan, Staten Island opwdd.ny.gov
- Community Support Agencies
- Day Habilitation Programs
- Medicaid/Medicaid waiver programs
- Residential Programs
- Respite Services
- Transitioning Care
Developmental Disabilities Regional Offices (DDROs) are the starting point to apply for services” n> DDROs are responsible for the following activities:waiver enrollment (a Federal-State partnership which makes certain types of services available within the home or community so as to avoid placement in an institution,local management of Individual and Community Supports ,management of resources for crisis intervention, advocacy,programs, services and supports for aging individuals with developmental disabilities”
Contact Information
Bernard Fineson (Queens) 718-217-4242, FAX: 718-217-4724
Brooklyn 718-642-6000, (evenings/answering machine) 718-642-6053/6054, FAX: 718-642-6282
Manhattan 646-766-3466, FAX: 646-766-3482
Bronx 718-430-0885, FAX: 718-430-0482
Staten Island 718-983-5200, FAX: 718-983-9768 -
Epilepsy Foundation of Metropolitan New York efmny.org
Provides a wide variety of services and supports to persons with epilepsy, their families and the community. Respite services, service coordination, information and referral services, socialization programs and educational presentations.
Contact Information
212-677-8550
Address
65 Broadway, ste 505, New York, NY 10006
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Family Residences Essential Enterprises FREE familyres.org
- Care at Home Case Management
- Case management-service coordination
- Community Support Agencies
- Day Habilitation Programs
- Residential Programs
- Respite Services
- Transitioning Care
Contact Information
Main Office
PH: 516-870-1600
FX: 516-870-1660Family Wellness and Community Services
PH: 631.273.1300
FX: 631.273.4342Apply for Services and Support (516) 870-1622 Admissionsinfo@familyres.org
Address
Main Office 191 Bethpage-Sweet Hollow Road Old Bethpage, NY 11804-1314 Family Wellness and Community Services 120 Plant Avenue Hauppauge, NY 11788
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Family Voices familyvoices.org
Helps families who have children with special health care needs through national parent to parent networks. Provides family’s tools to make informed decisions, advocate for improved public and private policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
Contact Information
National (505)872-4774 or (888)835-5669
Parent to Parent NYS (518)359-3006
Toll Free (800)305-8817