Welcome to the St. Mary’s Healthcare System Resource Directory
This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.
The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.
What you'll find
After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.
To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.Got it!
Category: COMMUNITY SUPPORTS
Website has information on children’s illnesses and disabilities, message boards for parents & kids and a resource guide that you can search by zip code.
A Medicaid waiver program that provides certain services to children in foster care who have mental health, developmental disabilities or health care needs to help them live in the community.
Office of Children and Family Services: 518-408-4064
Department of Health: 518-486-6562
Cardinal Hayes Home has one hundred ten developmentally disabled young people residing in its Intermediate Care Facilities (ICFs). The main campus in Millbrook, NY is home for sixty children and young adults. There is 24-hour care and supervision of the residents at every agency site.
We accept children who are:
•age 16 and under at time of admission
•ambulatory and non-ambulatory
•medically fragile, but stable
•tube-fed or on special diets
•in need of ICF level of care placement
We are not able to accept children:
•requiring 24-hour skilled nursing care
•under the age of 2
•requiring palliative or hospice care on admission
PO Box CH, St. Joseph Drive Millbrook, NY 12545
he following services are provided by this agency: Home Health Aide, Medical Social Services
Nursing ,Therapy – Occupational Therapy – PhysicalTherapy – Speech Language Pathology
263 Blue Point Ave Blue Point NY 11715 Bridget Durkin
- Benefit assistance
- Community Support Agencies
- Day Habilitation Programs
- Faith Based Disability Outreach
- Prevention Services
- Residential Programs
- Respite Services
Large multi-service agency serving the needs of the poor, sick, aged, developmentally disabled.Offers preventative services, such as parenting classes. Languages spoken English, Creole, French, Spanish.
Phone: Brooklyn 718-722-6001
Brooklyn: 191 Joralemon Street, Brooklyn, NY 11201 Queens: 23-40 Astoria Blvd, Astoria, NY 11102
Pediatric residences are home to children from the age of 5 to 21. The Center’s beautiful pediatric campus is shaped by this ideal, and includes an outdoor learning environment, creative classroom spaces and comfortable residences. On-site medical, physical, and psychological support is administered through clinics for primary medicine, dental services, neurology, orthopedics, psychiatry, podiatry and many more specialties.
The Center for Discovery 641 Old Route 17 Monticello, New York 12701
Provide a variety of services for people with disabilities. Benefit counselors can help with housing, health benefits, transportation, youth services, SSDI, SSI, food stamps. Brooklyn Parent Center provides outreach, information and referrals to parents, grandparents and caregivers of children ages 3-21 with disabilities.
Brooklyn Center for Independence of the Disabled (BCID): 718-998-3000, TTY: 718-998-7406
Brooklyn Parent Center: 718-998-3000
Bronx Independent Living Services, Inc: 718-515-2800 ext. 116 TTY: 718-515-2803
Queens Center for Independence of the Disabled: 646-442-1520 718-886-0427 TTY: 886-948-1064
Brooklyn Center for Independence of the Disabled (BCID): 27 Smith St., ste 200, Brooklyn, NY 12201 Brooklyn Parent Center: 27 Smith St., 2nd floor, Brooklyn, NY 12201 Bronx Independent Living Services, Inc: 4419 Third Avenue, Ste 2C, Bronx, NY 10457 Queens Center for Independence of the Disabled:80-02 Kew Gardens Rd, #107, Kew Gardens, NY 11415
Since 1987, Chai Lifeline’s mission has been to restore the light of childhood to children whose innocence ended when life-threatening or lifelong illness was diagnosed. Through programs that address the emotional, social, and financial needs of seriously ill children, their families, and communities, Chai Lifeline restores normalcy to family life, and better enables families to withstand the crises and challenges of serious pediatric illness
877 CHAI LIFE
Chai Lifeline New York/Greater Atlantic Region 151 West 30th Street Third Floor New York, NY 10001
- Advocacy Organizations
- Benefit assistance
- Foster Care Services
- Housing Assistance
- Legal services
- Prevention Services
Today, Children’s Aid serves New York’s neediest children and their families at more than 40 locations in the five boroughs and Westchester County. Our caring begins even before birth, through prenatal counseling and assistance, and continues through the high school years with college and job preparatory training programs. All aspects of a child’s development are addressed as he or she grows, from health care to academics to sports and the arts. And because stable children live in stable families, a host of services are available to parents, including housing assistance, domestic violence counseling and health care access
CAS switchboard: (212) 949-4800
The Children's Aid Society 105 East 22nd Street New York, NY 10010
The Medical Foster Care program serves children with severe and chronic medical conditions such as cerebral palsy, HIV/AIDS, congenital heart disease, cancer, hydrocephalus, seizure disorders, diabetes and Down’s syndrome. These children are referred to Children’s Aid by the New York City Administration for Children’s Services (ACS) from hospitals and long-term care facilities.
Please call (212) 949-4800
The Children's Aid Society 105 East 22nd Street , New York, NY 10010