Learn more about the Resource Directory

Welcome to the St. Mary’s Healthcare System Resource Directory

This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.

The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.

What you'll find

After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.

To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.

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Category: Transitioning Care

  1. Developmental Disabilities Regional Offices (DDRO)-Brooklyn,Bronx, Queens, Manhattan, Staten Island opwdd.ny.gov

    Developmental Disabilities Regional Offices (DDROs)  are the starting point to apply for services” n> DDROs are responsible for the following activities:waiver enrollment (a Federal-State partnership which makes certain types of services available within the home or community so as to avoid placement in an institution,local management of Individual and Community Supports ,management of resources for crisis intervention, advocacy,programs, services and supports for aging individuals with developmental disabilities”

    Contact Information

    Bernard Fineson  (Queens)  718-217-4242, FAX: 718-217-4724
    Brooklyn  718-642-6000, (evenings/answering machine) 718-642-6053/6054, FAX: 718-642-6282
    Manhattan  646-766-3466, FAX: 646-766-3482
    Bronx  718-430-0885, FAX: 718-430-0482
    Staten Island  718-983-5200, FAX: 718-983-9768

  2. Family Residences Essential Enterprises FREE familyres.org

    Contact Information

    Main Office
    PH: 516-870-1600
    FX: 516-870-1660

    Family Wellness and Community Services
    PH: 631.273.1300
    FX: 631.273.4342

    Apply for Services and Support (516) 870-1622 Admissionsinfo@familyres.org

    Address

    Main Office 191 Bethpage-Sweet Hollow Road Old Bethpage, NY 11804-1314 Family Wellness and Community Services 120 Plant Avenue Hauppauge, NY 11788

  3. New York State Department of Health Children with Special Health Care Needs health.ny.gov

    The Children with Special Health Care Needs Program seeks to improve the system of care for children with special health care needs from birth to 21 years of age and their families. The Program helps to shape public policy so families can get the best health care for their children.

    Children served by the CSHCN Program have an illness or condition for which they need extra health care and support services. These children might have a serious or long-lasting:

    • Physical condition,
    • Intellectual or developmental disability, and/or
    • Behavioral or emotional condition
  4. NYS Office for People with Developmental Disabilities (OPWDD) opwdd.ny.gov

    Coordinates services for New Yorkers with developmental disabilities.  Provides services directly and through a network of approximately 700 non-profit service providing agencies.  Includes Medicaid funded long-term care services and also provides NYS funded family support services, which assist families in providing care for their loved ones who live full-time in their family home.

    **OPWDD has established 13 Developmental Disabilities Service Offices (DDSOs) that allow for coordination of services.  The DDSOs are the starting points for applying for services.**

    Contact Information

    Information Line:  866-946-9733

    TTY:   866-933-4889

    Developmental Disabilities Service Offices (DDSOs)--

    Queens:  718-217-4242                   Brooklyn:   718-642-6000             Bronx/Manhattan:  212-229-3000

    Address

    44 Holland Avenue, Albany, NY 12229

  5. The Shield Institute shield.org

    The Shield Institute provides New York State contracted services to preschool children, ages 3-5, school age children ages 5 – 21, and to adults with lifelong disabilities, 21 years of age and older. Our programs are highly individualized to meet the unique developmental learning and social needs for people of all abilities

    Contact Information

    718-939-8700

    Address

    144-61 Roosevelt Avenue Flushing, NY 11354