Learn more about the Resource Directory

Welcome to the St. Mary’s Healthcare System Resource Directory

This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.

The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.

What you'll find

After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.

To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.

Got it!

Category: EDUCATION

  1. Advocates for Children of New York advocatesforchildren.org

    Advocates for Children of New York (AFC)’s mission is to promote access to the best education New York can provide for all students, especially students of color and students from low-income backgrounds. We use uniquely integrated strategies to advance systemic reform, empower families and communities, and advocate for the educational rights of individual students.

    Contact Information

    For help with an education-related issue, please call our Education Helpline at1-866-427-6033 from 10:00 AM to 4:00 PM, Monday through Thursday.

    You can also visit our Who We Serve page for detailed information about our services.

    Administrative Offices151 West 30th Street, 5th FloorNew York, NY 10001Phone: 1-212-947-9779Fax: 1-212-947-9790Email: info@advocatesforchildren.org

  2. DREAMMS Assistive Technology for Children with Special Needs DREAMMS.org

    Facilitates technology access for children with special needs.  Information clearinghouse and search facility.

  3. Early Childhood Direction Center -Queens ecdc-queens.webs.com

    Provides free, confidential information and referral services to families and professionals working with young children diagnosed or suspected to have special needs.

    Contact Information

    For more information please contact our staff:
    Catherine Warkala MS Director Cwarkla@queenscp.org
    Michelle Rojas Bilingual Family Service Worker mrojas@queenscp.org
    Siddika Duke Bilingual Family Service Worker Sduke@queenscp.org

  4. Early Childhood Direction Center- Staten Island siuh.edu

    The Early Childhood Direction Center is a free service, funded by the New York State Education Department with sponsorship by Staten Island University Hospital.

    Our Mission is to help parents and professionals locate and use community services that are designed for children (age five and under) with special needs or handicaps

    Address

    North Site 475 Seaview Avenue, Staten Island, NY 10305 Phone: (718) 226-9000 South Site 375 Seguine Avenue, Staten Island, NY 10309 Phone: (718) 226-2000

  5. Early Childhood Direction Center-Manhattan nyp.org

    The Early Childhood Direction Center (ECDC) in Manhattan provides free, confidential information, referral and support services to families and professionals working with children with diagnosed or suspected special needs

    Contact Information

    (212) 746-6175

    Address

    New York Presbyterian Hospital 409 East 60th Street, Suite 3-312 New York, NY 10022

  6. Early Intervention Referral NYC nyc.gov

    The Early Intervention Program is a statewide  program that provides many different types of early intervention services to infants and toddlers with disabilities and their families. In New York State, the Department of Health is the lead state agency responsible for the Early Intervention Program.To be eligible for services, children must be under 3 years of age and have a confirmed disability or established developmental delay, as defined by the State, in one or more of the following areas of development: physical, cognitive, communication, social-emotional, and/or adaptive The Early Intervention Program offers a variety of therapeutic and support services to eligible infants and toddlers with disabilities and their families, including:

    • family education and counseling, home visits, and parent support groups
    • special instruction
    • speech pathology and audiology
    • occupational therapy
    • physical therapy
    • psychological services
    • service coordination
    • nursing services
    • nutrition services
    • social work services
    • vision services
    • assistive technology devices and services

    Contact Information

    800-522-5006; in New York City–311

  7. Early Intervention Referrals- NYC Department of Health health.ny.gov

    Early intervention services are provided to help your child grow and develop,and to help you support and promote your child’s development.
    These services include evaluation services (such as hearing and vision screening);home visits; speech, physical and other therapies; child developmentgroups; family counseling; and, sometimes, even help with transportation.

    These services are provided at no out-of-pocket cost to you.

    Any child from birth to age three with a developmental delay, disability or condition that affects development may need help.

    For the phone number of your county’s program:For the phone number of your county’s program, call the New York State “Growing Up Healthy” 24-hour Hotline at 1-800-522-5006 In New York City, call 311

  8. First Hand Foundation firsthandfoundation.org

    First Hand is a not-for-profit organization that provides funding for individual children (up to age 18) with health-related needs when insurance and other financial resources have been exhausted. Funding may be available for clinical procedures, medicine, therapy, prosthesis; equipment, such as wheelchairs, assistive technology equipment, care devices, or hearing aids; and vehicle modifications.  Lodging, food, gas, parking and transportation for families of seriously ill children who must travel during treatment are also among the needs which might be covered.

     

    Contact Information

    816-201-1569

    Address

    2800 Rockcreek Parkway, Kansas City, MO 64117

  9. Growing Up Healthy Hotline health.ny.gov

    A 24 hour/7 day a week (English/Spanish) hotline number you can call to get more information on NYS educational services, health insurance, and financial assistance.  An operator will help you identify services you need and help you locate a provider in your area.

    Contact Information

    Phone: 1-800-522-5006

    TTY:  1-800-655-1789

  10. Healing the Children htcne.org

    A non-profit, non-partisan, volunteer organization, whose purpose is to help children throughout the world receive medical care unavailable to them due to a lack of medical and financial resources or health insurance. The Domestic Kids Program provides medical treatment and assistance to children in our local communities who are unable to get these services due to a lack of financial resources or medical insurance. They have arranged for children to receive services such as dental, medical, and surgical care, medical equipment, prescription medications, medical equipment, physical therapy, speech therapy, etc.

    Contact Information

    860-355-1828

    Address

    PO Box 129, 219 Kent Road, New Milford, CT, 06776