Learn more about the Resource Directory

Welcome to the St. Mary’s Healthcare System Resource Directory

This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.

The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.

What you'll find

After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.

To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.

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Category: Assistive technology

  1. DREAMMS Assistive Technology for Children with Special Needs DREAMMS.org

    Facilitates technology access for children with special needs.  Information clearinghouse and search facility.

  2. First Hand Foundation firsthandfoundation.org

    First Hand is a not-for-profit organization that provides funding for individual children (up to age 18) with health-related needs when insurance and other financial resources have been exhausted. Funding may be available for clinical procedures, medicine, therapy, prosthesis; equipment, such as wheelchairs, assistive technology equipment, care devices, or hearing aids; and vehicle modifications.  Lodging, food, gas, parking and transportation for families of seriously ill children who must travel during treatment are also among the needs which might be covered.

     

    Contact Information

    816-201-1569

    Address

    2800 Rockcreek Parkway, Kansas City, MO 64117

  3. Healing the Children htcne.org

    A non-profit, non-partisan, volunteer organization, whose purpose is to help children throughout the world receive medical care unavailable to them due to a lack of medical and financial resources or health insurance. The Domestic Kids Program provides medical treatment and assistance to children in our local communities who are unable to get these services due to a lack of financial resources or medical insurance. They have arranged for children to receive services such as dental, medical, and surgical care, medical equipment, prescription medications, medical equipment, physical therapy, speech therapy, etc.

    Contact Information

    860-355-1828

    Address

    PO Box 129, 219 Kent Road, New Milford, CT, 06776

  4. National Assistive Technology Technical Assistance Partnership resnaprojects.org

    The National Assistive Technology Technical Assistance Partnership (NATTAP) provides technical assistance to the 56 state and territory assistive technology programs as authorized under the Assistive Technology Act of 1998

    Contact Information

    703/524-6686 TTY: 703/524-6639
    resnaTA@resna.org

    Address

    1700 North Moore Street, Suite 1540 Arlington, VA 22209-1903

  5. TRAID IN Equipment Exchange Program justicecenter.ny.gov

    Technology Resources Center – NYC

    United Cerebral Palsy of NYC
    120 East 23rd Street, 5th Floor  4519

    212-979-9700 x 717 Voice     212- 475-0842 Fax     212- 253-2690 TTY

    Brooklyn Satellite Office
    160 Lawrence Avenue, Room B10 Brooklyn, NY 11230

    718-436-7979 x710 Voice 718-907-3189 Fax 718-854-5656 TTY

    Website: www.ucpnyc.org/site/c.buIWJcNSKnL6G/b.6561427/k.48DE/Assistive_Technology

    Long Island TRAID Center

    Long Island Communities of Practice P.O. Box 5013 Montauk, NY 11954

    631-668-4858 (Voice) 631-668-6079 (Fax) 631-668-4858 (Voice/TTY) Website:

    www.licop.org/traid.html

  6. United Cerebral Palsy Nassau ucpn.org

    UCP Nassau provides support services (educational, rehabilitation, respite, residential) to children & adults with physical & developmental disabilities.    English, Spanish, Chinese

    UCP Nassau Residential Program offers a variety of life style options for adults with developmental disabilities.  Individualized and personalized service is the primary mission of the program. The residential team focuses on the person not the disability in an effort to provide both a home-like and integrated living environment.

     

     

    Contact Information

    Residential Services: 516-377-2040

    Address

    380 Washington Avenue, Roosevelt, NY 11575

  7. United Cerebral Palsy NYC ucpnyc.org

    UCP NYC provides support services (educational, rehabilitation, respite, residential) to children & adults with physical & developmental disabilities.    English, Spanish, Chinese

    UCP NYC operates residential facilities in the Bronx, Brooklyn, Manhattan and Staten Island, and offers a variety of residential services for adolescents and adults with physical and developmental disabilities. UCP of NYC residential services span a range of care and support levels, from intermediate care facilities for persons with complex needs, to supportive apartments for those requiring minimal staff assistance.

     

    Contact Information

    877-UCP CONNECT (877-827-2666)

    email:  projectconnect@ucpnyc.org

    Address

    80 Maiden Lane, 8th floor, New York, NY 10038