Learn more about the Resource Directory

Welcome to the St. Mary’s Healthcare System Resource Directory

This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.

The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.

What you'll find

After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.

To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.

Got it!

Category: Respite Services

  1. AHRC NYC ahrcnyc.org

    AHRC New York City, a family governed organization, is dedicated to enhancing the lives of individuals with intellectual and developmental disabilities and their families.

    Contact Information

    212) 780-2500
    TDD/TTY: 1-800-662-1220

    Address

    83 Maiden Lane New York, NY 10038

  2. Block Institute blockinstitute.org

    Formerly known as the Brooklyn School for Special Children (BSSC), Community Residential Opportunities for Handicapped (CROH), and Training & Rehabilitation in Useful Service (TRIUS). Based in Brooklyn, New York, we provide unique and individualized services to children and adults with disabilities who reside within the five boroughs of New York City. Our programs include Educational Services, Adult Day Services, Vocational Services and Residential Services, as well as Medicaid Service Coordination and Clinical Services.

    Contact Information

    Phone: (718) 906-5400 • Fax: (718) 714-0197

    Address

    Block Institute 376 Bay 44th Street, Brooklyn, NY 11214

  3. Catholic Charities of Brooklyn and Queens ccbq.org

    Large multi-service agency serving the needs of the poor, sick, aged, developmentally disabled.Offers preventative services, such as parenting classes. Languages spoken English, Creole, French, Spanish.

    Contact Information

    Phone:  Brooklyn   718-722-6001

    Queens    718-726-9790

    Address

    Brooklyn: 191 Joralemon Street, Brooklyn, NY 11201 Queens: 23-40 Astoria Blvd, Astoria, NY 11102

  4. Consumer Directed Personal Assistance program (CDPAP) cdpaanys.org

    This Medicaid program provides services to chronically ill or physically disabled individuals who have a medical need for help with activities of daily living (ADLs) or skilled nursing services.
    Services can include any of the services provided by a personal care aide (home attendant), home health aide, or nurse. Recipients have flexibility and freedom in choosing their caregivers.
    The consumer or the person acting on the consumer’s behalf (such as the parent of a disabled or chronically ill child) assumes full responsibility for hiring, training, supervising, and – if need be – terminating the employment of persons providing the services.

    To be eligible for CDPAP, an individual must:

    Be Medicaid eligibile;
    Be eligible for home care services, personal care services, or private duty nursing;
    Require some or total assistance with one or more home care, personal care, or skilled nursing service;
    Have a stable medical condition; and
    Be self-directing or have a designated representative who is willing and competent to assume the roles and responsibilities that go with the program.

    Contact Information

    518-813-9537
    bryan@cdpaanys.org

    Address

    CDPAANYS 272 Broadway Albany, NY 12204

  5. Developmental Disabilities Regional Offices (DDRO)-Brooklyn,Bronx, Queens, Manhattan, Staten Island opwdd.ny.gov

    Developmental Disabilities Regional Offices (DDROs)  are the starting point to apply for services” n> DDROs are responsible for the following activities:waiver enrollment (a Federal-State partnership which makes certain types of services available within the home or community so as to avoid placement in an institution,local management of Individual and Community Supports ,management of resources for crisis intervention, advocacy,programs, services and supports for aging individuals with developmental disabilities”

    Contact Information

    Bernard Fineson  (Queens)  718-217-4242, FAX: 718-217-4724
    Brooklyn  718-642-6000, (evenings/answering machine) 718-642-6053/6054, FAX: 718-642-6282
    Manhattan  646-766-3466, FAX: 646-766-3482
    Bronx  718-430-0885, FAX: 718-430-0482
    Staten Island  718-983-5200, FAX: 718-983-9768

  6. Epilepsy Foundation of Metropolitan New York efmny.org

    Provides a wide variety of services and supports to persons with epilepsy, their families and the community.  Respite services, service coordination, information and referral services, socialization programs and educational presentations.

    Contact Information

    212-677-8550

    Address

    65 Broadway, ste 505, New York, NY 10006

  7. Family Residences Essential Enterprises FREE familyres.org

    Contact Information

    Main Office
    PH: 516-870-1600
    FX: 516-870-1660

    Family Wellness and Community Services
    PH: 631.273.1300
    FX: 631.273.4342

    Apply for Services and Support (516) 870-1622 Admissionsinfo@familyres.org

    Address

    Main Office 191 Bethpage-Sweet Hollow Road Old Bethpage, NY 11804-1314 Family Wellness and Community Services 120 Plant Avenue Hauppauge, NY 11788

  8. Heartshare Human Services of NY heartshare.org

    Making a world of difference in our community since 1914, HeartShare Human Services of New York is a nonprofit human services agency dedicated to improving the lives of people in need of special services and support. We help individuals develop to their fullest potential and lead meaningful and enriched lives.

    HeartShare is committed to serving the needs of individuals with developmental disabilities and their families

    Contact Information

    718-422-4200

    Address

    HeartShare Human Services of New York 12 MetroTech Center, 29th Floor Brooklyn, NY 11201

  9. Lifespire

    Lifespire is committed to the principle that all individuals with a developmental disability are able to become contributing members to their family and community

    Contact Information

    212 741 0100 ext 4518

  10. National Respite Locator Service archrespite.org

    Helps parents & caregivers find respite services in their state and local area to match their specific needs.  The database is provided for informational purposes only and is not all-inclusive. The fact that an organization is or is not listed in the database does not represent an endorsement or lack of endorsement for any purpose.