Welcome to the St. Mary’s Healthcare System Resource Directory
This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.
The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.
What you'll find
After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.
To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.
Got it!Category: Respite Services
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AHRC NYC ahrcnyc.org
AHRC New York City, a family governed organization, is dedicated to enhancing the lives of individuals with intellectual and developmental disabilities and their families.
Contact Information
212) 780-2500
TDD/TTY: 1-800-662-1220Address
83 Maiden Lane New York, NY 10038
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Block Institute blockinstitute.org
Formerly known as the Brooklyn School for Special Children (BSSC), Community Residential Opportunities for Handicapped (CROH), and Training & Rehabilitation in Useful Service (TRIUS). Based in Brooklyn, New York, we provide unique and individualized services to children and adults with disabilities who reside within the five boroughs of New York City. Our programs include Educational Services, Adult Day Services, Vocational Services and Residential Services, as well as Medicaid Service Coordination and Clinical Services.
Contact Information
Phone: (718) 906-5400 • Fax: (718) 714-0197
Address
Block Institute 376 Bay 44th Street, Brooklyn, NY 11214
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Catholic Charities of Brooklyn and Queens ccbq.org
- Benefit assistance
- Faith Based Disability Outreach
- Prevention Services
- Residential Programs
- Respite Services
Large multi-service agency serving the needs of the poor, sick, aged, developmentally disabled.Offers preventative services, such as parenting classes. Languages spoken English, Creole, French, Spanish.
Contact Information
Phone: Brooklyn 718-722-6001
Queens 718-726-9790
Address
Brooklyn: 191 Joralemon Street, Brooklyn, NY 11201 Queens: 23-40 Astoria Blvd, Astoria, NY 11102
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Consumer Directed Personal Assistance program (CDPAP) cdpaanys.org
This Medicaid program provides services to chronically ill or physically disabled individuals who have a medical need for help with activities of daily living (ADLs) or skilled nursing services.
Services can include any of the services provided by a personal care aide (home attendant), home health aide, or nurse. Recipients have flexibility and freedom in choosing their caregivers.
The consumer or the person acting on the consumer’s behalf (such as the parent of a disabled or chronically ill child) assumes full responsibility for hiring, training, supervising, and – if need be – terminating the employment of persons providing the services.To be eligible for CDPAP, an individual must:
Be Medicaid eligibile;
Be eligible for home care services, personal care services, or private duty nursing;
Require some or total assistance with one or more home care, personal care, or skilled nursing service;
Have a stable medical condition; and
Be self-directing or have a designated representative who is willing and competent to assume the roles and responsibilities that go with the program.Contact Information
518-813-9537
bryan@cdpaanys.orgAddress
CDPAANYS 272 Broadway Albany, NY 12204
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Developmental Disabilities Regional Offices (DDRO)-Brooklyn,Bronx, Queens, Manhattan, Staten Island opwdd.ny.gov
Developmental Disabilities Regional Offices (DDROs) are the starting point to apply for services” n> DDROs are responsible for the following activities:waiver enrollment (a Federal-State partnership which makes certain types of services available within the home or community so as to avoid placement in an institution,local management of Individual and Community Supports ,management of resources for crisis intervention, advocacy,programs, services and supports for aging individuals with developmental disabilities”
Contact Information
Bernard Fineson (Queens) 718-217-4242, FAX: 718-217-4724
Brooklyn 718-642-6000, (evenings/answering machine) 718-642-6053/6054, FAX: 718-642-6282
Manhattan 646-766-3466, FAX: 646-766-3482
Bronx 718-430-0885, FAX: 718-430-0482
Staten Island 718-983-5200, FAX: 718-983-9768 -
Epilepsy Foundation of Metropolitan New York efmny.org
Provides a wide variety of services and supports to persons with epilepsy, their families and the community. Respite services, service coordination, information and referral services, socialization programs and educational presentations.
Contact Information
212-677-8550
Address
65 Broadway, ste 505, New York, NY 10006
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Family Residences Essential Enterprises FREE familyres.org
Contact Information
Main Office
PH: 516-870-1600
FX: 516-870-1660Family Wellness and Community Services
PH: 631.273.1300
FX: 631.273.4342Apply for Services and Support (516) 870-1622 Admissionsinfo@familyres.org
Address
Main Office 191 Bethpage-Sweet Hollow Road Old Bethpage, NY 11804-1314 Family Wellness and Community Services 120 Plant Avenue Hauppauge, NY 11788
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Heartshare Human Services of NY heartshare.org
Making a world of difference in our community since 1914, HeartShare Human Services of New York is a nonprofit human services agency dedicated to improving the lives of people in need of special services and support. We help individuals develop to their fullest potential and lead meaningful and enriched lives.
HeartShare is committed to serving the needs of individuals with developmental disabilities and their families
Contact Information
718-422-4200
Address
HeartShare Human Services of New York 12 MetroTech Center, 29th Floor Brooklyn, NY 11201
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Lifespire
Lifespire is committed to the principle that all individuals with a developmental disability are able to become contributing members to their family and community
Contact Information
212 741 0100 ext 4518
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National Respite Locator Service archrespite.org
Helps parents & caregivers find respite services in their state and local area to match their specific needs. The database is provided for informational purposes only and is not all-inclusive. The fact that an organization is or is not listed in the database does not represent an endorsement or lack of endorsement for any purpose.