Learn more about the Resource Directory

Welcome to the St. Mary’s Healthcare System Resource Directory

This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.

The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.

What you'll find

After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.

To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.

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Category: Sibling support

  1. Sibling Support Project siblingsupport.org

    The Sibling Support Project is a national effort dedicated to the life-long concerns of brothers and sisters of people who have special health, developmental, or mental health concerns

    Contact Information

    Local Sib Shops
    NYC- Annette Spallino, LCSW,AHRC-NYC
    83 Maiden Lane, New York,  NY 10038 , Phone: 2127802592 http://www.ahrcnyc.org
    Sibshop Description: Sibshops are held for several sessions during the year on Saturdays for children ages 5-15 who have brothers and sisters with developmental and medical disabilities.

    NYC- Rachel Mirkin,TBD
    New York, NY ,Phone: 339-234-0295
    Sibshop Description: The NMD Sibshops group is geared toward children who have a brother or sister with Neuromuscular Disease. We are currently in the beginning stages of planning our Sibshops and we hope to hold our first event this Fall!

    Brooklyn Alyse Appelbaum
    Ohel Bais Ezra,1563 49th st,Brooklyn, NY 11219 map
    Phone: (718)6863497,http://www.ohelfamily.org
  2. Sibsplace southnassau.org

    SIBSPlace was conceptualized to assist children who have brothers and sisters with cancer or another devastating illness.  These children typically struggle with feelings of loss of control and consistency, isolation, jealousy, embarrassment, guilt, abandonment, sadness, fear and anxiety.  At SIBSPlace, the children discover a safe environment where we balance attention to their emotional needs and much needed levity and diversions from stress.

    Contact Information

    (516) 374-3000

    Address

    1420 Broadway • Hewlett, NY 11557 •