Welcome to the St. Mary’s Healthcare System Resource Directory
This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.
The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.
What you'll find
After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.
To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.
Got it!Category: Home Care
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Consumer Directed Personal Assistance program (CDPAP) cdpaanys.org
This Medicaid program provides services to chronically ill or physically disabled individuals who have a medical need for help with activities of daily living (ADLs) or skilled nursing services.
Services can include any of the services provided by a personal care aide (home attendant), home health aide, or nurse. Recipients have flexibility and freedom in choosing their caregivers.
The consumer or the person acting on the consumer’s behalf (such as the parent of a disabled or chronically ill child) assumes full responsibility for hiring, training, supervising, and – if need be – terminating the employment of persons providing the services.To be eligible for CDPAP, an individual must:
Be Medicaid eligibile;
Be eligible for home care services, personal care services, or private duty nursing;
Require some or total assistance with one or more home care, personal care, or skilled nursing service;
Have a stable medical condition; and
Be self-directing or have a designated representative who is willing and competent to assume the roles and responsibilities that go with the program.Contact Information
518-813-9537
bryan@cdpaanys.orgAddress
CDPAANYS 272 Broadway Albany, NY 12204
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DREAMMS Assistive Technology for Children with Special Needs DREAMMS.org
Facilitates technology access for children with special needs. Information clearinghouse and search facility.
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First Hand Foundation firsthandfoundation.org
First Hand is a not-for-profit organization that provides funding for individual children (up to age 18) with health-related needs when insurance and other financial resources have been exhausted. Funding may be available for clinical procedures, medicine, therapy, prosthesis; equipment, such as wheelchairs, assistive technology equipment, care devices, or hearing aids; and vehicle modifications. Lodging, food, gas, parking and transportation for families of seriously ill children who must travel during treatment are also among the needs which might be covered.
Contact Information
816-201-1569
Address
2800 Rockcreek Parkway, Kansas City, MO 64117
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Healing the Children htcne.org
A non-profit, non-partisan, volunteer organization, whose purpose is to help children throughout the world receive medical care unavailable to them due to a lack of medical and financial resources or health insurance. The Domestic Kids Program provides medical treatment and assistance to children in our local communities who are unable to get these services due to a lack of financial resources or medical insurance. They have arranged for children to receive services such as dental, medical, and surgical care, medical equipment, prescription medications, medical equipment, physical therapy, speech therapy, etc.
Contact Information
860-355-1828
Address
PO Box 129, 219 Kent Road, New Milford, CT, 06776
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National Assistive Technology Technical Assistance Partnership resnaprojects.org
The National Assistive Technology Technical Assistance Partnership (NATTAP) provides technical assistance to the 56 state and territory assistive technology programs as authorized under the Assistive Technology Act of 1998
Contact Information
703/524-6686 TTY: 703/524-6639
resnaTA@resna.orgAddress
1700 North Moore Street, Suite 1540 Arlington, VA 22209-1903
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NYC Personal Care Program nyc.gov
The Personal Care program provides home attendant and/or housekeeping services to Medicaid-eligible clients who are having difficulty with at least one or more activities of daily life, such as walking, cooking, cleaning, bathing and using the bathroom, and who are in stable medical condition.
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St Mary’s Healthcare System for Children stmaryskids.org
- Camps
- End of life care
- Feeding therapy
- Home Care
- Long Term Care Facilities
- Medicaid Service Coordination (MSC)
- Nursing Agencies
- Palliative and Hospice Care
- Pediatric Day Healthcare Program
- Pediatric Rehabiliation services
- Skilled Nursing Centers
St. Mary’s Healthcare System is one of only a handful of organizations around the country that is dedicated to providing intensive rehabilitation, specialized care, and education to children with special needs and life-limiting conditions. St. Mary’s provides a continuum of care, treating children throughout the metropolitan area through a network of inpatient, home care and community programs and services, setting a standard of excellence in pediatric healthcare.
Contact Information
St. Mary’s Hospital for Children
29-01 216th Street Bayside, NY 11360
Telephone: (888) KIDS-NYS or (718) 281-8800
Email: info@stmaryskids.orgSt Mary's Hospice/Palliative Care Program
Referrals can be made from a child’s physician and can also be made internally by St. Mary’s caregivers. For more information, please call 718-281-8952.St. Mary’s Preschool
Queens Borough President Helen Marshall Early Education Center
Telephone: (718) 281-8848Center for Pediatric Feeding Disorders
Telephone: (718) 281-8541St. Mary’s Pediatric Day Healthcare and Summer Camp
29-01 216th Street
Bayside, New York 11360
Vivian Figueroa, Director 718-281-8666St. Mary’s Kids at Roslyn
1 Expressway Plaza, Suite 106 Roslyn Heights, NY 11577
Telephone: (516) 621-2681Home Care & Community Programs
Community Programs Central Intake
Telephone: (800) 270-2478St. Mary’s Home & Community Programs – New Hyde Park Office
5 Dakota Drive, Suite 200 New Hyde Park, NY 11042
Telephone: (718) 281-8600St. Mary’s Community Care Professionals, Corp - Elmhurst Office
91-31 Queens Boulevard, Suite 201 Elmhurst, NY 11373
Telephone: (718) 281-8573St. Mary’s Community Care Professionals, Corp - New Hyde Park Office
5 Dakota Drive, Suite 200 New Hyde Park, NY 11042
Telephone: (718) 281-8903 -
TRAID IN Equipment Exchange Program justicecenter.ny.gov
Technology Resources Center – NYC
United Cerebral Palsy of NYC
120 East 23rd Street, 5th Floor 4519212-979-9700 x 717 Voice 212- 475-0842 Fax 212- 253-2690 TTY
Brooklyn Satellite Office
160 Lawrence Avenue, Room B10 Brooklyn, NY 11230718-436-7979 x710 Voice 718-907-3189 Fax 718-854-5656 TTY
Website: www.ucpnyc.org/site/c.buIWJcNSKnL6G/b.6561427/k.48DE/Assistive_Technology
Long Island TRAID Center
Long Island Communities of Practice P.O. Box 5013 Montauk, NY 11954
631-668-4858 (Voice) 631-668-6079 (Fax) 631-668-4858 (Voice/TTY) Website:
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United Cerebral Palsy Nassau ucpn.org
UCP Nassau provides support services (educational, rehabilitation, respite, residential) to children & adults with physical & developmental disabilities. English, Spanish, Chinese
UCP Nassau Residential Program offers a variety of life style options for adults with developmental disabilities. Individualized and personalized service is the primary mission of the program. The residential team focuses on the person not the disability in an effort to provide both a home-like and integrated living environment.
Contact Information
Residential Services: 516-377-2040
Address
380 Washington Avenue, Roosevelt, NY 11575
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United Cerebral Palsy NYC ucpnyc.org
UCP NYC provides support services (educational, rehabilitation, respite, residential) to children & adults with physical & developmental disabilities. English, Spanish, Chinese
UCP NYC operates residential facilities in the Bronx, Brooklyn, Manhattan and Staten Island, and offers a variety of residential services for adolescents and adults with physical and developmental disabilities. UCP of NYC residential services span a range of care and support levels, from intermediate care facilities for persons with complex needs, to supportive apartments for those requiring minimal staff assistance.
Contact Information
877-UCP CONNECT (877-827-2666)
email: projectconnect@ucpnyc.org
Address
80 Maiden Lane, 8th floor, New York, NY 10038