Learn more about the Resource Directory

Welcome to the St. Mary’s Healthcare System Resource Directory

This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.

The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.

What you'll find

After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.

To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.

Got it!

Category: Grants/Financial support

  1. Aubrey Rose Foundation aubreyrose.org

    Helps families caring for children with life threatening illnesses with our focus being on the family unit. We strive to lift families from life’s complexities during this difficult time by providing emotional and financial support.

    Contact Information

    (513) 265-5801


    Aubrey Rose Foundation 3862 Race Road Cincinnati, OH 45211

  2. Disabled Children’s Relief Fund dcrf.com

    The Disabled Children’s Relief Fund is a non-profit organization that provides small grants to parents of disabled children and other organizations who provide services for disabled children. Grants are to be used for education, services and equipment to help improve the quality of life of a disabled child.

    Eligible parents of children with cerebral palsy, muscular dystrophy, spastic quadriplegia, encephalitis, rheumatoid arthritis, spina bifida, Down’s Syndrome, and other disabilities are eligible to receive assistance.


    Contact Information



    PO Box 89, Freeport, NY 11520

  3. First Hand Foundation firsthandfoundation.org

    First Hand is a not-for-profit organization that provides funding for individual children (up to age 18) with health-related needs when insurance and other financial resources have been exhausted. Funding may be available for clinical procedures, medicine, therapy, prosthesis; equipment, such as wheelchairs, assistive technology equipment, care devices, or hearing aids; and vehicle modifications.  Lodging, food, gas, parking and transportation for families of seriously ill children who must travel during treatment are also among the needs which might be covered.


    Contact Information



    2800 Rockcreek Parkway, Kansas City, MO 64117

  4. Friends of Karen friendsofkaren.org

    Provides emotional, financial and advocacy support for children with a life-threatening illness and their families.

    Contact Information



    116 East 16 Street, 5th Floor, New York, NY 10003

  5. Gift of Life, Inc. giftoflifeinc.com

    Facilitates free medical services, including cardiac surgery, to children suffering from heart disease who otherwise lack access to such services.

    Contact Information



    475 Northern Blvd., suite 22, Great Neck, NY 11021

  6. Healing the Children htcne.org

    A non-profit, non-partisan, volunteer organization, whose purpose is to help children throughout the world receive medical care unavailable to them due to a lack of medical and financial resources or health insurance. The Domestic Kids Program provides medical treatment and assistance to children in our local communities who are unable to get these services due to a lack of financial resources or medical insurance. They have arranged for children to receive services such as dental, medical, and surgical care, medical equipment, prescription medications, medical equipment, physical therapy, speech therapy, etc.

    Contact Information



    PO Box 129, 219 Kent Road, New Milford, CT, 06776

  7. Helping from Heaven-Lexi Kazian Foundation helpingfromheaven.org

    Obtaining therapy equipment for your child with special needs is expensive.  We are committed to helping families in need by providing grants three times per year.  Grant application deadlines are April 30, August 31, and December 1

    • Special needs bikes and tricycles
    • Wheelchairs and other special needs equipment
    • Adaptive bath and toileting equipment
    • Car seats
    • AFO’s
    • iPads and computers
    • Continuing education classes for therapists and parents regarding their child’s or client’s special need
  8. Supplemental Security Income (SSI) ssa.gov

    For children under 18, who may be found to disabled if he/she has a physical or mental impairment, or combination of impairments, that causes marked & severe functional limitations, that can be expected to last for a continuous period of at least 12 months.

    Contact Information

    Social Security Field Office:  1-800-772-1213

  9. The M.O.R.G.A.N. Project themorganproject.org

    Our Mission is to provide support to parents/caregivers and act as a reference source for information, financial resources, used equipment exchanges, research and clinical studies, support groups, web links, etc. This is done in the form of an interactive website, and newsletters;

    To make small individual awards (products & services only) to parents/caregivers of children with physical disabilities, for things like adaptive bath and shower chairs not otherwise covered by Medicaid or Insurance, or other non-covered items that would make caring for these children easier on the parent/caregiver and help to improve their quality of life at the same time.



    The M.O.R.G.A.N. Project, Inc. 4241 N. Highway 1 Melbourne, FL 32935 -

  10. Travis Roy Foundation travisroyfoundation.org

    The Travis Roy Foundation is dedicated to enhancing the life of individuals with spinal cord injuries and their families by providing adaptive equipment and to finding a cure through increased funding of research, resulting in self-reliance and the ability to be as independent as possible. Assistance is awarded to spinal cord injury survivors with paraplegia and quadriplegia (Please Note: paralysis must be due to a spinal cord injury that was caused by an accident, separate from complications caused at birth. Paralysis due to stroke, ALS, Spina Bifida, Multiple Sclerosis, etc., are not eligible).

    Contact Information

    (617) 619-8257
    Email: info@travisroyfoundation.org


    Hemenway & Barnes LLP 60 State Street, 8th Floor Boston, MA 02109