Learn more about the Resource Directory

Welcome to the St. Mary’s Healthcare System Resource Directory

This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.

The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.

What you'll find

After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.

To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.

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Category: END OF LIFE SUPPORT

  1. Bereaved Parents USA bereavedparentsusa.org

    Provides emotional support to families who have suffered the loss of a child.

    Contact Information

    If you are in crisis or just need to talk to someone about your loss please call:
    Lifeline at 800-273-8255

    Address

    Long Island NY Chapter Diana Roscigno Post Office Box 94 Bayville, New York 11709-0094 (516) 233-4848 2nd Wednesday of the month 7:30- 9:00pm Faith Lutheran Church 231 Jackson Avenue Syosset, NY 11791

  2. Compassionate Friends compassionatefriends.org

    When a child dies, at any age, the family suffers intense pain and may feel hopeless and isolated. The Compassionate Friends provides highly personal comfort, hope, and support to every family experiencing the death of a son or a daughter, a brother or a sister, or a grandchild, and helps others better assist the grieving family

    Contact Information

    877.969.0010
    630.990.0010

    Address

    The Compassionate Friends, PO Box 3696, Oak Brook, IL 60522 (or) 1000 Jorie Blvd. Suite 140, Oak Brook, IL 60523

  3. Elizabeth Seton Pediatric Center setonpediatric.org

    Pediatric Center where children receive team-based trans-disciplinary care, including medicine, nursing, social services, palliative care, mental health, rehabilitation, education, nutrition, child life/therapeutic activity, pastoral care and more

    Contact Information

    Phone # - 914-294-6300

    Address

    300 Corporate Blvd. South, Yonkers, NY 10701

  4. Hospice and Palliative Care Association NYS hpcanys.org

    To promote the availability and accessibility of quality hospice and palliative care for all persons in New York State confronted with life-limiting illness

  5. Hospice Care Network hospicecarenetwork.org

    Special care is taken to support the family throughout the advanced illness experience. Hospice Care Network cares for patients of all ages, religions, races and illnesses in Nassau, Suffolk and Queens Counties.

    Contact Information

    (516) 832-7100

    Address

    99 Sunnyside Boulevard Woodbury, NY 11797

  6. Metropolitan Jewish Health System (MJHS) mjhs.org

    Pediatric Hospice & Palliative Care
    One of the largest and most respected pediatric programs in Greater New York. Also one of the few programs in New York State to receive a Department of Health Pediatric Waiver, allowing MJHS to provide palliative care services to pediatric patients who are actively receiving curative treatment for their life-limiting medical condition.

    Contact Information

    (800) HOSPICE

    Address

    39 Broadway, Ste. 200 New York, NY 10006

  7. North Shore Family Guidance Center northshorechildguidance.org

    Individual Therapy,Family Therapy,Group Therapy,Parent Education,Behavior Management Programs,
    Family Support Programs,,Medical Management,Consultation Services

    Contact Information

    (516) 626-1971

    Address

    480 Old Westbury Road Roslyn Heights, NY 11577-2215

  8. Sacred Heart Church Bayside sacredheartbayside.net

    Sr. Kathleen Masterson-Bereavement Counselor—group and individual

    Contact Information

    718-224-5695

    Address

    215-35 38th Ave. Bayside, NY 11361

  9. Sibsplace southnassau.org

    SIBSPlace was conceptualized to assist children who have brothers and sisters with cancer or another devastating illness.  These children typically struggle with feelings of loss of control and consistency, isolation, jealousy, embarrassment, guilt, abandonment, sadness, fear and anxiety.  At SIBSPlace, the children discover a safe environment where we balance attention to their emotional needs and much needed levity and diversions from stress.

    Contact Information

    (516) 374-3000

    Address

    1420 Broadway • Hewlett, NY 11557 •

  10. St Mary’s Healthcare System for Children stmaryskids.org

    St. Mary’s Healthcare System is one of only a handful of organizations around the country that is dedicated to providing intensive rehabilitation, specialized care, and education to children with special needs and life-limiting conditions. St. Mary’s provides a continuum of care, treating children throughout the metropolitan area through a network of inpatient, home care and community programs and services, setting a standard of excellence in pediatric healthcare.

    Contact Information

    St. Mary’s Hospital for Children
    29-01 216th Street Bayside, NY 11360
    Telephone: (888) KIDS-NYS or (718) 281-8800
    Email: info@stmaryskids.org

    St Mary's Hospice/Palliative Care Program
    Referrals can be made from a child’s physician and can also be made internally by St. Mary’s caregivers. For more information, please call 718-281-8952.

    St. Mary’s Preschool
    Queens Borough President Helen Marshall Early Education Center
    Telephone: (718) 281-8848

    Center for Pediatric Feeding Disorders
    Telephone: (718) 281-8541

    St. Mary’s Pediatric Day Healthcare and Summer Camp
    29-01 216th Street
    Bayside, New York 11360
    Vivian Figueroa, Director 718-281-8666

    St. Mary’s Kids at Roslyn
    1 Expressway Plaza, Suite 106 Roslyn Heights, NY 11577
    Telephone: (516) 621-2681

    Home Care & Community Programs
    Community Programs Central Intake
    Telephone: (800) 270-2478

    St. Mary’s Home & Community Programs – New Hyde Park Office
    5 Dakota Drive, Suite 200 New Hyde Park, NY 11042
    Telephone: (718) 281-8600

    St. Mary’s Community Care Professionals, Corp - Elmhurst Office
    91-31 Queens Boulevard, Suite 201 Elmhurst, NY 11373
    Telephone: (718) 281-8573

    St. Mary’s Community Care Professionals, Corp - New Hyde Park Office
    5 Dakota Drive, Suite 200 New Hyde Park, NY 11042
    Telephone: (718) 281-8903