Welcome to the St. Mary’s Healthcare System Resource Directory
This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.
The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.
What you'll find
After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.
To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.
Got it!Category: EMOTIONAL SUPPORT
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Syndromes Without a Name undiagnosed-usa.org
Syndromes Without A Name USA (SWAN USA) offers support, information and advice to families of children living with a syndrome without a name. They are often described in many different ways such as; undiagnosed syndrome, unknown diagnosis, mystery diagnosis
Contact Information
Phone: (269) 692-2090 Toll Free (888) 880-7926Address
1745 Lorna Ln, Otsego MI 49078
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The Bronx Parent Center Without Walls Resourcesny.org
Provides free trainings, education, and assistance of parents of children with special needs.
Address
116 East 1
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The Child Center of NY childcenterny.org
The Child Center of NY reaches out across diverse ethnic populations to create a supportive, caring place for children and families at risk. For more than 60 years we have been a powerful presence in the community—transforming outcomes of lives in the margins.
Contact Information
To contact us directly, please call us at 718-651-7770 X202 or email your inquiry to meghanasawant@childcenterny.org.
Address
Central Administrative Office 60-02 Queens Boulevard Lower Level Woodside, NY 11377