Welcome to the St. Mary’s Healthcare System Resource Directory
This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.
The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.
What you'll find
After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.
To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.
Got it!Category: INSURANCE-MEDICAID-FINANCIAL
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Independent Living Center-Bronx bils.org
Bronx Independent Living Services (BILS) is a non-profit, community based organization dedicated to empower all people with disabilities to understand and exercise their civil and human rights in order to live fully integrated lives in mainstream society. BILS assists individuals by providing them the necessary tools to make informed decisions about their own lives through access to education, skills development, and access to the appropriate resources.
Contact Information
Bronx 718-515-2800
Address
4419 3rd Ave # 2c, Bronx, NY 10457
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Independent Living Center-Brooklyn bcid.org
Contact Information
718-998-3000
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Independent Living Center-Manhattan cidny.org
CIDNY is the voice of people with disabilities in New York City. Our staff includes social workers, lawyers and other highly qualified professionals, most of whom are people with disabilities. CIDNY’s staff is also ethnically diverse, with language capacity to assist consumers in Spanish, Cantonese, Mandarin, Hindi, and American Sign Language.
Contact Information
212-674-2300
Address
841 Broadway, Suite 301 New York, NY 10003
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Independent Living Center-Queens cidny.org
CIDNY is the voice of people with disabilities in New York City. Our staff includes social workers, lawyers and other highly qualified professionals, most of whom are people with disabilities. Along with their professional credentials, the staff all have a strong belief in self-determination and bring valuable life experiences and insights to their work. CIDNY’s staff is also ethnically diverse, with language capacity to assist consumers in Spanish, Cantonese, Mandarin, Hindi, and American Sign Language.
CIDNY speaks for everyone who lives with a disability, whether it came at birth, by injury, disease, or during the process of aging. Together we educate the public. We advocate for our civil rights and a strong safety net of benefits and services. CIDNY makes sure that our voices are heard where and when issues affecting our lives are decided.
Contact Information
646-442-1520
Address
80-02 Kew Gardens Rd, Suite 107 Kew Gardens, NY 11415
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Independent Living Center-Staten Island siciliving.org
The Staten Island Center for Independent Living, Inc., is a non-residential resource center that offers services to individuals with disabilities of all ages, their families, significant others, teachers, employers, businesses, and those who believe that an individual with a disability has the right to take responsibility for his/her own life.
The center is unique in that it is primarily staffed and governed by professionals who have had a personal experience with a disability and believe that disability does not mean inability.
Contact Information
718-720-9016
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Lifeline- discount phone service usac.org
Lifeline is a government benefit program that provides discounts on monthly telephone service for eligible low-income subscribers to help ensure they can connect to the nation’s communications networks, find jobs, access health care services, connect with family and their children’s schools, and call for help in an emergency. Lifeline is supported by the federal Universal Service Fund (USF).
Lifeline provides discounts on monthly telephone service (wireline or wireless) for eligible subscribers. These discounts are currently set at $9.25 per month. Federal rules prohibit eligible low-income subscribers from receiving more than ONE Lifeline service per household.
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Lifespire
Lifespire is committed to the principle that all individuals with a developmental disability are able to become contributing members to their family and community
Contact Information
212 741 0100 ext 4518
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Medicaid Waiver Services
Waiver services allow people with disabilities to receive long-term care services in most integrated setting in their communities, rather than receiving care in an institutional setting. These programs “waive” or remove some of the requirements for getting Medicaid services. There are a variety of Medicaid waivers that serve children and/or young adults, and there are specific eligibility requirements, guidelines & rules, funding limitations and participation limits for each of New York State’s current waivers. Generally, the cost of receiving services through a waiver needs to be less than the cost of services if the individual were placed in a nursing home or other institutional setting.
Waiver programs for children in NYS include:
Bridges to Health (B2H)– provides certain services to children in foster care who have mental health, developmental disabilities or health care needs to help them live in the community. Office of Children and Family Services: 518-408-4064 or Department of Health: 518-486-6562 www.ocfs.state.ny.us/main/b2h
Care at Home (CAH)- provides medical assistance to families with children living at home with severe disabilities or medical conditions. There are different levels of CAH. Contact local CAH coordinator at local Developmental Disabilities Services Office. www.opwdd.ny.gov
Home and Community Based Services (HCBS)- provides services and support to children and adolescents with serious emotional disturbances to remain at home. www.opwdd.state.ny.us
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NY Health Access wnylc.com
This site is intended to serve as a constantly evolving resource for advocates, caregivers, and consumers on public health insurance programs in New York State.
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NYC Care at Home Program nyc.gov
The Care-At-Home (CAH) Program provides a Medicaid-financed plan of community-based services to enable severely physically disabled children – who might otherwise qualify for hospital or nursing home placement – to live with th eir families. All Medicaid and additional services, such as case management and home adaptations, are available to assist a family in caring for their child.
The Care at Home Program includes a Medicaid waiver enabling parents normally not eligible to qualify their child for Medicaid.
For more information on the Care At Home Program services, eligibility criteria and application process, learn about Care At Home Program (in PDF)