Welcome to the St. Mary’s Healthcare System Resource Directory
This resource directory is for families/caregivers of children who have medically complex needs or long-lasting conditions that require extra health care and support services.
The information in this directory is provided to help you find resources to assist you with finding help for your child and family. The range of care/disability/health issues varies amongst children so the information may or may not pertain to your child.
What you'll find
After a family learns that their child is ill parents/caregivers typically begin to think about how they can best care for their child. The resources in this directory include agencies, service providers, advocacy organizations, and other resources to assist with providing a quality life for children with medically complex needs.
To find a resource enter your area of interest in the search box on the side bar and the location in the box located on the top of the screen. The directory is intended to assist you with being the best advocate for your child. Although we attempt to keep the directory current resources change constantly.
Got it!Category: Uncategorized
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New York State Department of Health Resource Directory For Children and Young Adults with Special health Care Needs health.ny.gov
Provides resources for families of children and young adults who have serious illness or long lasting conditions for which they need extra health care and support services. Availabile in English, Spanish, French, Russian and Chinese. For copies vicsit www.health.ny.gov Resource Directory for Children with Special Health care Needs. Or ask the patient navigator or social worker for a copy.
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NYC Administration for Childrens Services-Subsidized ChildCare/Early Learn nyc.gov
The Administration for Children’s Services (ACS) funds free or low cost subsidized child care services for eligible families living in New York City. Child care is available for children ages 6 weeks through 12 years, while children with special needs may be able to receive care through age18.
Contact Information
212-341-0900
Address
150 William Street, New York, NY 10038
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NYC Child Care Resource and Referral Consortium nycchildcareconsortium.org
The New York City Child Care Resource & Referral Consortium includes five organizations that are committed to promoting and supporting high quality, culturally competent early care and education services.
Contact Information
888-469-5999
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NYS Justice Center for the Protection of People with Special Needs justicecenter.ny.gov
The Justice Center is committed to supporting and protecting the health, safety, and dignity of all people with special needs and disabilities through advocacy of their civil rights, prevention of mistreatment, and investigation of all allegations of abuse and neglect so that appropriate actions are taken
Contact Information
General Phone:
(518) 549-0200 (Voice)
TTY: Dial 7-1-1 for the NYS Relay and give the operator 1-518-549-0200Report Abuse:
1-855-373-2122 (staffed 24 hours a day, 7 days a week)
TTY: 1-855-373-2123Information & Referral:
1-800-624-4143 (Monday-Friday, 8:30 am to 4:30 pm)
TTY: Dial 7-1-1 for the NYS Relay and give the operator 1-800-624-4143Address
NYS Justice Center for the Protection of People with Special Needs 161 Delaware Avenue Delmar, New York 12054-1310
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Parent to Parent New York State parenttoparentnys.org
Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions.
Regional Office
Parent to Parent of New York City
25 Beaver Street, Room 405 New York, NY | 10004
Phone: 1-800-405-8818 212-741-5545 Fax: 212-741-5545
Counties Served: Bronx, New York (Manhattan), Kings (Brooklyn), Queens
Contact Information
Parent to Parent New York State
{518) 381-4350
(800) 305-8817info@ptopnys.org
Address
Parent to Parent of NYS 500 Balltown Road Schenectady, NY 12304 (
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Queens Chinese American Planning Council cpc-nyc.org
Provides services for Asian persons with developmental disabilities (ages 0-up).
Contact Information
718-358-8899 ext 140
Address
136-18 39th Avenue, 8th Floor, Flushing, NY 11354
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Sick Kids Need Involved People (SKIP of NY) skipofny.org
Provides assistance to help very sick and/or developmentally disabled children in the state of New York to get home from hospital and institutions to live with their families and participate in their schools and communities to the fullest extent possible.
Contact Information
Phone: 212-268-5999
Address
601 West 26 Street, ste 522, NY, NY 10001
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Sinergia sinergiany.org
Provides programs & services to children & adults with disabilities, with an emphasis on multicultural disadvantaged groups. Includes Latino, African American, Native American and/or migrant populations. Works with underserved families with limited English proficiency.
Contact Information
212 643-2840
Address
2082 Lexington Avenue, 4th floor, New York, NY 10035
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Southern Asian Council for Social Services sacssny.org
Assists underserved south Asian community. Provides counseling, health care assess, medical insurance assistance, parent education, preventive services.
Populations served: Pakistani, Bangladeshi, Nepali, Sri Lankan, Afghan. Languages spoken: Bengali, Gujarati, Hindi, Kannada, Punjabi, Urdu.
Do not have to be documented to receive services.
Contact Information
718-321-7929
Address
140-15 Holly Avenue, Flushing, NY 11355
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St. May’s Healthcare System for Children Community Programs
Depending on your child’s needs St. Mary’s community programs provides service such as: private duty nursing, home health aides, personal care aides, physical therapy, occupation therapy, speech, social work, case management, and Medicaid service coordination.
Contact Information
To find out about a program your child might qualify for call 1-800-270-2478, Monday-Friday 9am-5pm